Monday, November 29, 2010

So tonight around 4:40 I get a phone call while I was doing dishes and didn't know the phone was ringing.  After I finish I listen to the voicemail and it is Vanderbilt's TrialNet
 study calling with Emily's test results.  That's odd!?!?!?  I always get a letter in the mail, not a phone call.  So I try to call back and I can't find the person who called me in the first place.  Nevermind, I knew the person directing the study.  I emailed her and within 3 min I had the phone call.  Not the results I was expecting though...
Emily tested positive for one of the 3 antibodies.  The GAD65.  Oddly enough all the other kids have been tested and they were all negative!  Yet, I have 2 children on insulin pumps with Type 1 diabetes!!!  Now I have one that is positive for the antibody and all we can do is wait for the 2nd blood draw on the 13th of December.

Sunday, November 28, 2010

Turkey day is over...

Now that the turkey is dead and gone...I am so glad!

We had 2 dinners this season.  It was hard to do the carbs for the first dinner b/c there were so many people and hard to keep track of what the kids were eating and drinking.  Jesse snuck a regular root beer bottle (IBC) without me knowing it.  I just shrugged my shoulders and said Oh Well! I will just account for it.  Elizabeth I think had like 3 pieces of pie too.  I kept having people coming up to me and asking if I knew she had a piece of pie double the size of what I told her to get...lol!  Such is life...don't we usually take double dose of something when we know we should only have the small amount??
All is well...

Sunday, November 21, 2010

This is only a test, BBBBEEEEEEEEEEEEPPPPPPPP!!...ok, we are back!

Sorry for the long pause.

So this past week we had an angel deliver a huge blessing to us.  We are constantly running low on supplies at times.  In our mailbox was a box of..........


Isn't that awesome??  This combined with our prescription will help us during the last week and a half of every month that we tend to be running out.

I had to make a call in to the Vanderbilt Pedi Endo late one evening.  Jesse threw up and his blood sugars were borderline hypo.  Not sure what to do with his pump.  Turn it off, take it off??  Thought I would do a 50% decrease on his basal until morning but 50% made it .000 an hour.  what's the point?  So I called the dr.  Awesome doctor I spoke with!!  I actually met her at an ADA expo that I volunteered for in the late summer time.  She talked to me for a bit to reassure my abilities in getting him through the night.  We made a plan on what to do if he stayed borderline hypo and continued to throw up and we made a plan if he dropped to the 40s and 50s.  Either way....we had a plan!  I just loved this doctor!  We have a really good too for our appointments.  In fact, I haven't really come across a bad one at the Pedi department.
What came about of our night, we went from UH OH he has a tummy virus to....Jesse why did you eat so many sausages at dinner!!
HAHA!

Elizabeth had a hard night the other night too.  She dropped from 174-80 in a matter of 20 minutes!  Thinking she would continue to drop, I painfully woke her up from her sweet slumber to give her some orange juice and a glucose tab.  Wow a sugar tab for Elizabeth! She was excited to be allowed one of these!  Checked her about 20 minutes later and she was up to 130s....continued to check her every 15 minutes until she was in the 170s and I felt comfortable to go to sleep for the night.  By then it was about 2 in the morning.

And me, well....all I can say is that I have changed my eating habits due to a bad 3 weeks of digestion.  I have since changed to gluten free and dairy free.  At the beginning I thought I was starving until I found my food staples and my way around the gluten free areas.  Still doing alot of research and probably will never be done as new things are continually coming out all the time.  I went to books a million bookstore and found 2 magazines.  I will post links to the magazines when I get back from an errand...

Monday, November 1, 2010

Productive or not...it's still a Manic Monday!

The day started off early.  Had to get two children off to early school hour.  Then took Elizabeth to school.  Called the nurse on our way to the dentist and let her know I would be out of commission for the next two hours.  I also let her know of the "fun" we had on Friday without her in the office...lol!

Jesse came home and said his tubing snapped off at the base by his reservoir today at recess.  The nurse popped a new set in for him, so glad they can take care of these things now.  He also was getting low at school and was excited to say that he ate a pudding!! :)  The little things that make Jesse happy!!

Thursday, October 28, 2010

We are going on a field trip...

Elizabeth's class is going on a field trip next week.  The options for her is either I go with her or the nurse goes.  Regardless, someone still has to cover the school because of Jesse's diabetes and insulin.  So I met with the principal for a minute (literally) and we figured out that I would go to the field trip and Jacob would come along (since I homeschool him and he is 11).  But I had to drive due to the fact that Jacob is not a student and still a minor, he can't ride the bus too.  We will be checking Elizabeth out of school and driving to the pumpkin farm and will meet her class there and then drive her back to the school.  Thankfully they aren't counting her absent either because we get enough of those on our own...lol!  I wonder how she is going to feel about riding with us instead of her friends at school though?  Well, I think this is for the best.
Also, talked to the teacher about the candy issue and hopefully that is resolved.  Elizabeth came home yesterday and said, "I had to drink water today because I was high"!  She sounded excited!  Checked her meter.  And while she wasn't too terribly high it was definitely out of her normal range for that time of day.  What did you eat that was different?  Ummm...just 2 gummy bears.  Just 2, huh?  Well, the rest is history.  I did let them know again today that gummy bears are a no go.  Today she is eating cici's pizza and a cupcake for lunch.  Can't wait to see those numbers.  Curious on how she will handle this pizza.  They did great and only ordered pepparoni and cheese pizzas.  Not as much fat in those pizzas as there is in the sausage ones. 
Tomorrow is Friday! Yea!

Tuesday, October 26, 2010

frustrating...

I know the teachers went through training.  And I know they have each been told the small things that work for each child.  But I don't remember saying don't reward my child with things that the other kids are getting.  That is what happened when they were using cookie cereal to do some kind of project at school.  Instead of Elizabeth getting to eat her baggie of maybe 15 cookie cereals she brought it home instead.  I didn't think anything of this until I found out more this morning about yesterday.  Elizabeth is still growing.  She is not on a "diet".  She is not restricted on anything except for "if" she has a soda it is diet and she can't eat any kind of gummy candies (worms, fish, frogs...).  For whatever reason, they really make her blood sugar go nuts.  Oh and pizza too.  We are trying to figure out which delivery company works best for her blood sugars.  We did learn that papamurphy's pizza sauce burns her lips literally.  I am thinking that it is more acidic than others.
So if you know a diabetic or a diabetic child.  Don't assume they can't eat something just b/c they are diabetic.  We do crave cake, cookies and candy just like everyone else.  We just have extra things we have to do in order to eat them.

Don't these look good?  Half of my house would say yes, and half would say no.  There is a little diddy that is sung on Noggin "No, I don't like candy corn.  No, I don't like candy corn...  Check it out! LOL  I can remember this song being done every halloween since the kids were tiny.  I could have made these last night if I had some candy corn in the house.  I made chocolate muffins and blueberry muffins for bfast this morning.

Friday, October 22, 2010

Two in a row...

Not sure how this happened...but last night both of the kids were 91 before eating dinner and then this morning they woke up with the number of 83!  Good numbers, sure not complaining at all about that.  Just odd for it to happen.  Elizabeth wasn't even awake this morning when Jesse tested and last night they both tested at separate times too.
I have a friend of mine that when her son get a blood sugar reading of 100 they call it hitting the lottery.  So he gets $1 bill.  I think this is a really cool game to play with the kids! 
The kids are both in strong honeymoons so we have the majority of their numbers are within the normal range.  We do get a few stray low numbers but not to the point where they are symptomatic.  And of course we deal with the stubborn highs too.  You know the ones.  The kind where you do everything possible to bring them down and they won't budge.  Until you start heading to the ER, miraculously they get back in the normal range and the ketones go away too.  Yes, we have had this happen!  Went all the way to Vanderbilt with high ketones and high BGs with Elizabeth Anne.  Get there and she has a low in the waiting room.  Have to get D50 on board and the ketones were nowhere to be seen! Grrr...
Have a blessed Friday!